As I drove away from the hospital on the morning of October 24th I looked at the sky and it was beautiful. The sun was starting to make its journey and I remember how happy and blessed I was to be alive and able to see the sunrise.
I went home and dreaded walking into the front door because I knew I was going to have to tell my parents that their son, their first-born son, was in a bad way. But, I did just that in what I can look back on now as a very robotic fashion, like I wasnt really me telling them but someone else.
I then went up to bed and passed out – literally.
I was awakened at 9:30 about 3 1/2 hours after signing away my brother to by a phone call from the Surgeon himself calling to let me know that my brother had made it through the surgery and that he would now be on the 9th floor of the Hospital, the CCU/ICU department. This is where the very sick people go that need constant care.
I went downstairs and told Mom that my brother had made it through the surgery and we both expressed our happiness. I then went back up to sleep.
Later that afternoon Mom and I were getting ready to go and see my brother when my older sister came down the driveway and suggested she drive instead. I was totally ok with that as I really didn’t think I was any shape to drive.
The normally short drive to the hospital seemed to take an eternity.
Once we were inside, we got our passes and were up in the elevator.
We went to the call center to tell them we were there and to buzz us in.
We found the nurses station who pointed us to room 913.
I walked around the corner not really knowing what to expect.
I saw my brother in the bed Intubated, not being able to breathe on his own with all of these things attached to him. He looked yellow still and bloated. He was asleep, or as I would later find out, he was sedated to prevent his body from having seizures from alcohol withdrawal. Those seizures could be deadly and the doctors had to walk a fine line between over medicating and saving him.
This was the only time I allowed myself to cry. I looked at him and it took my breath away. My sister gave me a hug and it was nice. I quickly composed myself not allowing myself to cry for a long time after that.
I had to be strong (if for nothing else) for my brother.
It took me a few minutes before I could bring myself to go into the room itself. I don’t know what I was afraid of. It was after all the same person in that bed that I was talking to the night before..
I walked over to the side of him and I stroked his arm and I leaned over and said “Tommy, I don’t know if you can hear me, but its me Susie”
I don’t know if he could or couldn’t hear me but each time I would go to see him (almost everyday) I would talk to him.
It was like watching a baby in utero watching my brother sleep. He would move and stretch out his arms and open his eyes.. but he wasnt really there yet. He was somewhere in there but nowhere near the surface.
The doctors had told me that his body was poisoned with a huge amount of ammonia that was unable to leave his body due to his kidneys and liver basically failing. His brain was suffocating and the doctors were giving him everything they could without killing him to get the ammonia out of his body.
Then came the day that he extubated himself! Yes, that’s correct he decided that he had had just about enough of that thing down his throat. He was also able at this time to be moved into a chair. It wasnt pretty but it beat the alternative.
It seemed to me that he was getting better and I was even able to have the room nurse put the phone to his ear so he could hear me if I wasnt able to come and see him. The nice nurse would put the phone to his ear and I would talk. He was still unable to talk but sitting in the chair he could nod. She told me he was nodding.
On November 11 he had a set back where he had fluid forming around his lungs and I had to demand they intubate him again. He had to have a quart of fluid removed from behind his lung and it was also around this time that they found he needed surgery again as his initial surgery was leaking.
I gave the orders for the surgery and we waited.
IT WAS THE FIRST TIME DURING THIS WHOLE ORDEAL THAT I THOUGHT.. THAT’S IT. HE’S GOING TO DIE.
My Mother, myself and my boyfriend even had to go to the hospital to discuss with the doctors that if my brother should code.. that there would be no resuscitation. He was in no way out of the woods yet and this second surgery was causing him not to clot and by all accounts it was not looking good.
The surgery by the Sergeons account was a success and as I said to the good Dr. who called me to tell me this “Well Dr., your part of the puzzle was done properly. Now its between God and the patient to do the rest” He laughed and said.. “That’s a good way to put it” I told him “No, its the only way to put it”.
To be continued………………
